March for Masto

By  |  0 Comments

By Leisa McKenna & Claire Ellis

Imagine living with an itch that never goes away, and you can’t scratch it. Imagine being able to write your name on your skin, without a pen, or being allergic to alcohol and stress. Mast Cell Activation Disorder (MCAD) and Systemic Mastocytosis does all of the above and more.

It’s hard to say, but Mastocytosis is much harder to live with. TAMS (The Australasian Mastocytosis Society) was established due to the overwhelming need for sufferers and their supporters to find a local voice and active support network. We are an independent ‘not for profit’ incorporated organisation, created as an advocacy, education and support body for those throughout Australasia who suffer from or care for those with a Mast Cell Activation Disorder (MCAD), including Systemic Mastocytosis, Cutaneous Mastocytosis, and Mastocytomas.

Our second annual fundraising walkathon on International Rare Disease Day (28th February) will be held in various locations including Melbourne, Bendigo and Sydney this year.

St Kilda is a renowned tourist hotspot and it’s for this reason that we have chosen to hold the Melbourne leg of the walkathon on our very own foreshore. What better place to show a united front and to spread the word in alliance with International Rare Disease day?

St Kilda Beach provides both locals and visitors with a chance to enjoy the beautiful Catani Gardens and a pleasant walk along the Esplanade to Middle Park Beach; this being our turn around point. We’ll finish back in Catani Gardens with a picnic as a thank you for supporting TAMS. We are hoping these walks will raise much needed awareness for Mast cell disorders amongst the locals and tourists that St Kilda draws.

If you would like to join us in our walk, bring a friend or get a team together, contact Leisa on info@mastocytosis.com.au. Or if would rather donate visit the website www.mastocytosis.com.au

Find us on FacebookFind us on FacebookFind us on FacebookFind us on Facebook